A big thank you to Jim Buckle who ran the Kingston 16 mile Breakfast Run on 13th October 2013 and raised over £3,150 for Small Steps! Jim’s close friends have attended Small Steps with their daughter who has Rett Syndrome. This is her mother’s description of what Small Steps has done for them:
“My four year old daughter has Rett Syndrome. It has taken so much from her. Small Steps has taught me and her to concentrate on and to celebrate the things that she can do as we come to terms with what she cannot do. Small Steps helps us to explore what she can do in fun and interesting ways; to think outside of the box and to use everyday objects with her to explore and build her capabilities.
The team are caring, always there to listen, always want to help and give advice. In such a difficult situation we look forward to our Wednesday afternoons at Small Steps. Small Steps has been an anchor and a guide for us since before her diagnosis.
There have been dark times and moments when thinking about the future had been difficult but what Small Steps has done from the beginning has helped me to be positive and, from seeing my daughter taking part in the activities where she has responded well, has taught me that she can still have fun, laugh, giggle, smile and enjoy lots of praise and encouragement just like any other child.
My daughter has gradually lost the use of her hands but the approach and variety of games and activities I have learnt through Small Steps has given her the confidence to really try and use them in another way. Something as simple as pushing some soft balls through a ladder; to see her pride when she can do it and her joy as she watches it fall into a “goal” is so rewarding for her and myself. The claps and the praise from the other mums and Carers build her self esteem and for a moment make her feel like the most special person in the world. At Small Steps, she really is one of the most special people in the world…”
Please sponsor Jim on his JustGiving Page and help more families access Small Steps.